If you are caring for a child with a serious illness and need help or advice, or just someone to talk to, our helpline and family support hub is here for you.
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Built to Last? The state of children's palliative care
Across the UK, workforce shortages, funding shortfalls, and a lack of leadership and accountability have created an unacceptable postcode lottery in access to children’s palliative care.
I had to fight for the right end of life care for my son
When it became clear that 11-year-old Oliver had no treatment options left for his brain tumour, his mum Clare wanted to give him the best death possible – to be at home, surrounded by his family.
“I honestly thought that when your child is dying, you would have 24/7 care at home. But it turns out, that just isn’t the case.”
Clare had to fight for Oliver to die peacefully at home, because of where she lives. She is one of many families affected by this unacceptable postcode lottery. It needs to change.
We are here if you need support
If you are parent or carer who looks after or knows a child or young person expected to have a short life, we’re here to help.
Call us on 0808 8088 100or email helpline@togetherforshortlives.org.uk
We are here to support professionals caring for seriously ill children, young people and families
We support all the professionals who are there for babies, children and young people with life-limiting conditions, and their families. We bring professionals together, share practice and offer resources and tools to support your work with children and families.
We need your help
Please give your money, your time or your voice, and help us change lives. Together we will make a lifetime of difference for children with short lives, helping every family get the very best care and support, every step of their journey – no matter how short.
Helping us get the best out of life
Two-year-old Elijah is unable to walk, talk or see, making ‘normal’ family life a challenge. For Children’s Hospice Week his mum shared what an incredible impact their local service makes on their lives, as “somewhere where you don’t have to worry about fitting in.”
